The NANN position Statement for the Palliative care for newborns and infants recommends that parents are part of the caregiving team and should participate in the decision making process. It referances the use of a family medical record (e.g.,the Penticuff Family Medical Record, Penticuff & Arheart, 2005). Using this tool allows families to track their infants progress and better understand when the infant is not "getting better". I have found the tool, but can not find directions or education for the use of the tool. Can any one help me, or aim me in the correct direction? Thanks